Common Framework for Networked Personal Health Information: CP8- Consumer Obtainment and Control of Information

Publication Date: June 2008

Publisher: John and Mary R. Markle Foundation. Connecting for Health

Author(s): Connecting for Health Work Group on Consumer Access Policies for Networked Personal Health Information

Research Area: Health Information Technology

Keywords: Information Policy; Health Information Technology; Personal Health Record (PHR)

Type: Report

Coverage: United States


Covers several areas to facilitate the consumer's ability to electronically collect, store, and control copies of personal health information, including requesting data in an electronic format, allowing for proxy access to an account, requesting amendments, or disputing entries of data. Also covers appropriate retention of information in inactive accounts, and consumer requests to "delete" data and terminate their accounts.